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Sunday 12 June 2011

12th June 2011

I'm hating phase two!
The 'tinctures' are disgusting and the timing is lousy, life could not be harder for me right now.
Our family member remains poorly, my work schedule has become hectic and every weekend will be taken up with weddings... 11 this year.
My partner is amazed how well I have been coping with such stresses, upon reflection so am I.

Latest development has appeared under the skin on my hands and feet, a similar appearance to stinging nettle rash. Any body any ideas?




Any advice would be much appreciated, my GP tells me "it's because your nearly 40 years old and you've never been nearly 40 years old, so what do you expect?" how rude. GP's get a grip and start to look outside the book of GP practice!!!!!!

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Wednesday 1 June 2011

June 1st 2011

My apologise for my absence, my CFS/ME has improved beyond recognition of the past.

The nutrition programme was a tough lifestyle change albeit one I will never have any motivation to deviate from. The rewards outweigh the desires!

A member of our family has been very ill over the past two weeks creating very personal challenges. We are hoping only 'good news' will precede the next days, weeks, months and years. Lack of sleep has accumulated more so this week leaving my thoughts stripped and my personality null and void.

The next few days will be used for reflection and preparation for Phase 3.




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Friday 20 May 2011

May 19th 2011

Something of significance is happening to my ME/CFS during this first week of Part Two of my research.

The ME/CFS is definitely dying and whilst this process happens the pain 'kick' I'm getting from it's determination not to leave my body is only making me stronger. I will not give in!

Pre this experiment I conducted many screens and tests all of which I shall share with you in time. However, due to the pain I experiencing I have asked a colleague to re-screen my intrinsic biomechanics. My colleague is completely blind to this experiment, in other words he has no idea about this experiment I am conducting.
The re-screen has shown my nerves have failed all the tests, in comparison to screens taken 4 weeks ago, they have increased into a worsened state by 75%. It is like each nerve root has become heightened to something and has therefore bound themselves down.
The consequences of this gives me limited range of movement and continuous discomfort. I have no position that lends itself to relieve my pain, nor any treatment that is subjective to improvement of my situation.

Nerve mobilisation... I wonder?
Watch this space.



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Wednesday 18 May 2011

May 18th 2011

This week has been full of challenges; challenges that will test my bodies resilience against temptation and verification of my ability to cope with stress.

'if you keep doing what you've always done, you'll always get what you've always got'

'the definition of insanity is doing the same thing over and over again and expecting a different result'

Self meditation of these profound quotes I hope will keep me on the straight and narrow!

Tomorrow brings on it's own challenges..

Supplements... On track
Nutrition... Perfect
Exercise... Regime to start on Saturday



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Tuesday 17 May 2011

May 18th 2011

The shrinking of my bones now runs down my thighs engaging it's disabling momentum to both my knees. I am tired and have a 'banging' headache.

Acupuncture treatment on my occipital parasympathetic points... A nice warm feeling has been encouraged and my management of pain increased.


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May 17th 2011

For two days I have been experiencing pain and discomfort that resembles my pelvic and thigh bones shrinking. I have been restricted to the sofa to rest, apply the appropriate aromatherapy essence and use a 'wheatie' to apply plenty of heat to the areas of pain.
Movement tends to exacerbate the pain and discomfort, whilst stillness antagonises the problem. I know it is not a musculoskeletal Issue.... Could this be the release of toxins again?

I look forward to the next couple of days passing....

Note to self... Book lymphatic drainage massage!


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Sunday 15 May 2011

May 15th 2011

Stage 1 of my ME/CFS research completed and in a short summary I have experienced; daily improvement of brain fog lifting, 4 kilos of pure FAT loss and improved energy levels. The statistical analysis is kept in a separate diary which one day i hope might help or support millions of others who have lived with ME/CFS.

However...My sleep has become unrestful... And my myalgia has worsened. Could it be the toxin release? I have made many changes to my diet and the myalgia IS located at every lymphatic junction. The strained sleepless nights? Maybe the change of diet is not exhausting my bodies immune system..

Stage 2 of my research begun today...


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Tuesday 10 May 2011

May 7th 2011

My day off has arrived, 'Being' is the rule for today.

7 days I have now been on this research project of mine... (3 years of study to get to this point...) And the results (so far) have been very significant.
The brain fog is lifting; words I need to use are available, thoughts are becoming clearer and conversations more thoughtful and not so urgent.

Of all the challenges that ME/CFS has shared with me.... For me......Brain fog has been the most upsetting.

Good morning UK!


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6th May 2011

As I drive home my thoughts alert me to a deeper understanding of ME/CFS.

As i look in the rear view mirror i notice my eyes are tired, sore and watery whilst my body acknowledges it's own pain of DOMS (delayed onset of muscle soreness) - a post exercise outcome.
Before ME/CFS I used to greet DOMS with a triumphant smile and a gentle pat of self satisfaction. The victory was all about the challenges I had overcome during the training session, the release of powerful endorphins and the 'stride' of satisfaction that came immediately after.
Now DOMS are unrelated to physical exercise.... The are just another reminder to 'slow' down.


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Wednesday 4 May 2011

May 2nd 2011

A busy day with customers, lots of talking and teaching.... My eyes feel like they have been injected with adrenaline; darting from side to side delivering me an intense headache, watery achy eyes and self disorientation.
My adrenal glands are relaxed... My thoughts are 'parasympathetic' all the way... My jaw muscles are tightening making the pronounciation of 'adaptability' seem an almost impossible task...


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Monday 2 May 2011

May 1st 2011

I woke this morning with dramatically mixed feelings about starting the programme to GET RID of ME/CFS... I'm apprehensive about change, worried about the possible side effects; however the excitement of having my life back (although with more 'being' than 'doing' in my day to day life) and living loving life will dominate my thoughts.
10 Oregon Grape Root drops on Tongue 10 mins before breakfast... (tick) Replete (tick) FOS (tick) USANA digestive enzymes and multi vitamins and minerals (tick)...
It's going to be a great day!


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April 30th 2011

I lay in bed last night trying to focus on relaxing and not on the worry of what tomorrow brings.
For 6 days I have been on a strong dose of antibiotics, this is a desparate bid to rid my body of an infection. To me, my body, my beliefs... this is all wrong. However there no natural alternative that would have the power to break this infection.
Since a child, usually with a chest or throat infection, antibiotics have been prescribed to me on average twice per year.
As soon as the first tablet is administered it feels like poison running through my veins... Is it the ME/CFS that has me so alert and sensitive to my body? Or is it just fact... Antibiotics=poison?
I feel sick, my body hurts, my glands swell and i become irritated and restless worrying about where the next 'pain' will come from....


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Saturday 30 April 2011

April 29th 2011

I work in an industry that not only challenges my physical limitations but also has a daily impact on my beliefs about myself... It is the Health and Fitness Industry. I remain very passionate and excited about each day I spend within the industry and have enjoyed every challenge it has bestowed upon me. However 21 years on and it has nearly killed me....


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